I’m Still Here!
February 29, 2008 at 8:45 am | In General | 1 CommentTuesday didn’t get off to a very good start. I knew I wasn’t going to get good news when the doctors surgery called me in to give me my latest blood test results. It seems my adrenal glands aren’t working too well and I can now add Addison’s Disease to the list of things wrong with me
( I have also been suffering the last few days with a lot of pain and have been told that the next step is to switch me to Morphine patches…something I am not relishing the thought of
( Side effects aren’t that great but on the upside the amount of pain I am feeling right now should decrease…fingers crossed!
So, feeling a little down I decided to take a trip to the shops…not something I normally do on my own. Just as I was getting out of the taxi a familiar face waved at me from across the road. You know when you aren’t so sure if someone is waving at you? Well, this person was! It had been 9 years since I had seen my friend and we must have spent the next 2-3 hours chatting about all that had happened to us in that time. Meeting old friends has always scared me as I always think people will see my walking sticks and just walk on by. Thankfully that didn’t happen and on Sunday I’m going out with my friend and her brothers for a good old catch up!
Things were picking up!
Then, later that afternoon I was lucky enough to take delivery of my shiny new kit! I’ve been waiting about 2 weeks…mainly in decision making time…but boy did all this arrive on the right day! Run down of my new gear…
Canon 40D
Canon 17-85mm IS USM
Sigma 105mm Macro
Canon Battery Grip for 40D
Canon 430EX Flash
Circular Polariser
Extra battery
Manfrotto carbon fibre super dooper light tripod (swap for my extremely heavy tripod!)
Tripod bag…to make it easier for MBF to carry it around for me ;o)
Tamrac Expedition 4 (or 5…not sure which!) backpack
So, after some absolutely rubbish news, my day turned out pretty damn good!
Just checking in!
February 20, 2008 at 10:03 pm | In General, Lupus Stuff | 1 CommentSorry I haven’t posted for a few days, time seems to be flying by at the moment! Thanks to all of you who have popped by recently, your support really means a lot to me
I did manage to get the camera out a few days ago so thought I’d share a few shots with you all, nothing exciting and yes, more flowers! Here you go…



Now, I suppose the biggest news I have is that I have just placed my camera on eBay!! If anyone’s interested you can CLICK HERE to view the auction
Next Tuesday I will be taking delivery of my new ‘kit’…
Canon 40D
Canon 17-85mm IS USM
Canon Battery Grip for 40D
Sigma 105mm Macro
Canon 50mm
Canon 430EX Flash
Manfrotto carbon fibre super dooper light tripod (swap for my extremely heavy tripod!)
Tripod bag…to make it easier for MBF to carry it around for me ;o)
Tamrac Expedition 4 (or 5) backpack
I am VERY excited so expect lots of test shots from me next week
Other than that I am just about hanging in there, been a rough couple of weeks and I’ve been a little emotional but think I am keeping things together…just. In 2 weeks time I will be taking a trip to the hospital where I am to see the Lupus ‘people’, the same hospital where I lost Damian. It’s going to take a lot for me to go through those doors and I’m expecting it to be really tough so your thoughts and prayers for this will be greatly appreciated.
Last night…
February 14, 2008 at 6:29 pm | In Damian | 2 CommentsYou’re laying in that place, exactly as I remember you only this time people are coming and going all the time. I just seem to be standing around on the sidelines, never actually going up to your bed but wishing more than anything you’ll get better. All the things that happened in real life are happening now, they’ve come to tell us that this is it there is nothing more they can do. I spend time with your Mum, as I did then, excusing myself after a little while so I can go and wander around the corridors outside ICU and some how try and get my head around all thats happening.
When I return everyone has gone, it’s dark and you’re awake. You never woke. We are laughing and joking about the chapters of Harry Potter I have spent hours reading to you the last few nights, it’s as if nothing bad has happened. The tubes and machines have gone. The nurse comes and says we can go home, having questioned everything they told us earlier about how unwell you were I don’t ask a thing this time. I watch you have a shave, throw on some clothes and then were gone. Back at the flat you are smiling that beautiful smile and looking at me, then I realise I’m on the edge looking in again.
It was just a dream, like the ones I had in the months after you had gone. A cruel dream that leaves me wondering, even once I am awake, whether it is really true…
Happy Valentines Day Sweetheart, I’ll never forget you xxx
For MBF…
February 13, 2008 at 10:23 pm | In General | Leave a CommentThis past weekend I was cheered up not only by a visit from MBF but by the flowers he brought with him too
There are not many things better able to cheer me up than a bunch of my favourite photography subject! So, as I was having a down moment earlier today I picked up my camera and took a few snaps. Here they are…



To MBF, thanks for coming to visit and for making me smile
Not sure where I’d be without you XxX
Mike Gabriel R.I.P. 1960-2008
February 11, 2008 at 3:44 pm | In General | Leave a CommentMike was my BT buddy. He knew everything there was to know about the latest treatments, complementary therapies, anti sickness tablets and so much more. Along with his knowledge of all things brain tumour related he would always make me smile with tales of the endurance rides he would go on with his horses. I was in awe of this man who was battling such a terrible disease yet always managed to be cheerful and never said no when someone needed help.The world will be worse off without this wonderful man. I’ll never forget you Mike, rest easy now xx
PAW 2008 – WEEK 6
February 11, 2008 at 12:06 am | In PAW 2008 | 3 CommentsTags: bodiam castle
I am posting this late as MBF has been here this weekend and we’ve been out and about
I always like to see him and he even brought flowers this time, he’s not a bad lad
We visited Bodiam castle during the day yesterday, a really beautiful little place and definitely one we will return to at different times of the year
We also went out for dinner to a place which is rapidly becoming our favourite pub! Trouble with these visits is they also pass too soon
Still, not long now and we’ll be heading off on our first holiday of the year
Just a quick update, I received my interim offer for compensation yesterday and lets just say…I’m one very happy young lady
Thanks for all your positive thoughts, I really appreciate it. Once the moneys in my account I might let you all know what I intend to spend a little of it on!
My PAW shot this week has to be the castle…

Interim Payment
February 8, 2008 at 11:52 am | In General | 1 CommentI received a letter advising me that a letter is on its way to me with details of an interim offer of compensation for the injuries I sustained in 2005. I am really nervous about this. I called my caseworker who said he couldn’t give me details of the amount over the phone which I instantly took to mean it wasn’t going to be very much. I asked him if that was the case and he said he really couldn’t comment but what is a small amount to one person is a fortune to another. I’m not sure that’s made me feel any better! So, now it’s just a waiting game, hopefully the letter will arrive tomorrow. Fingers crossed
Thought I’d end this post with a bright flower photo to cheer me up…

Happy Birthday Sweetheart
February 6, 2008 at 12:01 am | In Damian | 3 Comments6th February 1975 – 18th June 2005
I can’t believe you’d be 33 today. A few days ago I found myself wondering how much things would have changed since I last held your hand. What would we be doing now? Where would we be living? Would we have visited all the places we talked about? Would I have become so poorly if you were still here? How good would you be at pushing my wheelchair?
How many grey hairs would you have?
It’s hard not to think of ‘what might have been’ and there isn’t a day goes by when I don’t miss you terribly and wish things were different but, today is about remembering the good times and celebrating your life
Finding someone special can take a lifetime, I was lucky to find it at just 15. Although our lives weren’t trouble free, the ups and downs were made so much easier with you by my side. Thank you for giving me the happiest 10 years of my life. My love is yours always XxX
I realise that most of you reading never got the chance to meet Damian but these words from his boss just about sum up what a wonderful man he was…
“…He was animated, caring and loyal, with a strong sense of fair play and justice. Always determined to get things right, but tolerant of other’s failings.
He was funny. Sharp, witty with an uncanny empathy for friends and colleagues. I personally shall miss his ability to gently mock my latest big idea, while believing passionately in its execution.
A man of simple passions; but simplicity born, not of dullness or ignorance, but a deep resonating simplicity born of personal tragedy, self knowledge and humanity. Having found his life, he loved it and lived it as brightly as possible…”
I know for sure that my life was changed forever that day, over 12 years ago, when I met Damian. I have so many fond memories. We loved our walks in the park and along the embankment in London, the way he’d say hello would brighten every one of my days, his wonderful smile made my heart skip a beat, just the feel of his hand in mine made me feel safe and secrure and even the way he ran his fingers through his hair would make me smile. All these things and many more help comfort me on days like today.
I’ll leave you with a few words from a song that’s very special to me…
I probably wouldn’t hurt so bad
I never pictured every minute without you in it
Oh you left so fast
Sometimes I see you standing there
Sometimes I feel an angel’s touch
Sometimes I feel that I’m so lucky to have had the chance to love this much
God gave me a moment’s grace
Cause if I’d never seen your face
I probably wouldn’t be this way
PAW 2008 – Week 4
February 2, 2008 at 3:18 pm | In Oscar, PAW 2008 | 1 CommentI can’t believe how quickly this year seems to be going already! January has whizzed by and although February has an extra day this year I’m sure it’ll pass just as quickly!
My shot this week is of one of the cats again. This is Alfie…

Like all cats, Alfie likes to sit in any sunny spot he can find and unlike me, he has perfect balance!
Oscar went ‘home’ today
Whilst part of me is sad I am relieved that he will now get the care and attention he needs and I am sure he’ll be fighting fit again in no time
I enjoyed having him here very much but this weeks upset has made me take a long hard look at what I will do in the future. I have enough trouble caring for myself from day to day … infact there are many days when that’s even too much for me. Introducing another ‘person’ into my life, realistically, is no longer an option. So, for now it’s just going to be me … I’ve managed just fine (ok, that’s questionable!) for the last 2 and a half years and I’m sure I’ll keep going now
I have many good things to look forward to this year. MBF and I have a few days away planned in March and April and no doubt we’ll find a few more things to keep us going through the rest of the year
So, whilst a little sad at only having Oscar for a brief period things are going to be ok
Have a good weekend everyone {{{HUGS}}}
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