28…
April 30, 2008 at 11:22 pm | In General | 3 Comments
This shot is of a white rose and I was just playing around with different colours! I love the softness in images like this, though technically this could be much better.
In just under an hour I turn 28.
It’s been a strange 28 years, the first 10 or so I have trouble remembering at all, the next 5 were typical teenager stuff, then I met D and spent 10 years being blissfully happy…the last 3 years have been rough and there seems to be no let up just yet
I am unwell as I type this
It has been coming on for a few days and I finally saw the doctor tonight. He thinks it is swelling in the joint between my jaw and ear and that it is part of whatever else is wrong with me
What makes me sad is it seems it’s going to be something I have to live with for a while at least…oh well.
I am not doing anything special for my birthday, infact I will be alone at home for most of it. But that’s ok, MBF and I have a nice weekend planned if I am feeling up to travelling a little so that’s my birthday ‘treat’
Hope you are all having a good week {{HUGS}}
I’m Back! (again!)
April 28, 2008 at 12:43 am | In General | Leave a CommentI’m back from my trip but struggling a little after such a busy few days. I promise you’ll all get to see my diary soon and I may be able to fill you in a little on some of the major things happening in my life right now soon too.
My meetings in Liverpool have opened up some huge opportunities for me and for the next 5 weeks I will be heading to Liverpool for 2 days each week to attend further meetings in the hope of making the journey for those diagnosed with a high grade brain tumour that little bit easier.
I have a personal interest in this subject after a sad event 18 months ago
I am hoping that my knowledge is now going to benefit many other newly diagnosed patients and their families/caregivers.
More soon…
Just one brief piece of good news…I did not go away to discuss my own health but through these meetings a Neurologist has offered to see me, after my next visit to my Lupus Consultant, to give me a second opinion! This is great as it will mean I may finally be able to rule MS out for certain…or confirm it. I’ll keep you posted!
Tough days
April 22, 2008 at 12:24 am | In General | 1 CommentSome days are tough, the last few days have been like that. I don’t know why.
My Mull diary is coming along well and I should have the first few days ready to share with you all soon.
Very early on Thursday morning I will be setting off for Liverpool. I have 2 days of meetings in Liverpool and around the Wirral. I am looking forward to all the meetings and hope they will all prove to be very productive. I very rarely go anywhere alone these days so this trip is a little scary for me, what I once thought of as easy (even with a broken foot) is now very difficult for me to do but the stubborn part of me won’t let my illness win! I will be visiting MBF’s family whilst I’m there which will be a welcomed break in ‘meetings’. They are lovely and have always made me feel very welcome so I am pleased I will have a little time to spend with them.
I have made a big step today in sorting out suitable accommodation for me for the future. MBF and Mum both feel I should not be living on my own at the moment and whilst I crave my own space I know that with my health the way it is I am better (safer?) staying where I am until we at least have an idea of what may happen to me in the future.
I’d like to turn the clock back 3 years and stop it there. When I was healthy and incredibly happy. When one persons beautiful smile could turn even my worst day into a happy one…
My hospital appointment…
April 18, 2008 at 6:17 am | In Lupus Stuff | Leave a CommentAs expected, I didn’t really get any answers…I just had to have LOTS of tests. The consultant was VERY thorough and both MBF and I were really impressed by him. He asked many questions I have not been asked in the last 18+ months and did some tests I had not had done before. They took lots and lots of blood and ordered a lot of disturbing tests on my heart which I go for in a few weeks.
He said that until he got the results of my tests and until he was able to view the MRI images himself he didn’t want to say what it could be but that there were ‘a few’ things he thought could be causing my symptoms.
So really I am no clearer BUT I am feeling like I will find out when I return on the 12th June for my results. He did mention that I could have developed some small blood clots in the major arteries in my neck. These arteries are the main blood supply to my brain and he has arranged for me to have an ultrasound scan of those arteries.
If it is anything to do with clots near my brain, as I have now been unwell for over 18 months, I will sue the a$$ off the hospital that originally treated me!!!!
Apart from the above the day was a little distressing for me having to return to ‘that place’ and when I was sent for my Echocardiogram (thingy!) I had a little bit of a breakdown/teary moment as that was one of the last places I went with D (so he could have some tests) when he could still talk
When I return for some of the other tests I will have to go to the floor that has the intensive care unit that D passed away in on
( It is so silly being upset by a building but it is very hard not to think of all that happened there
Well, I think you all know now about as much as me!
Now I can get on and edit some of my holiday snaps! I will also be posting my diary from my trip to Mull next week and will probably post a day or two at a time here before putting the whole thing in my Travel Diaries section
{{{HUGS}}} to all
Pics to keep you going!
April 15, 2008 at 8:50 pm | In General | Leave a CommentDue to a serious lack of time I have been unable to edit anymore than a couple of the photos I took from my holiday. Hopefully I will get round to the rest over the weekend
For now here are a couple of ‘mugshots’ for you all to chuckle at. You can click each image to view it larger if the small ones dont scare you enough
This is MBF using a super long lens to snap…erm…something far away I think!
The next shot was taken by MBF from a long way away with his super long lens! Apparently when I spot him trying to take a photo of me these days I turn away so he says he has had to resort to putting on a longer lens and standing miles away so I don’t know what he’s taking photos of!
This last shot was taken with MBF’s new fisheye lens and is of MBF, me and a friend of ours who joined us on holiday for a couple of days. It was taken in the lounge of the fantastic house we stayed in and the more I look at it the more I wish I was still there!
I have a request for those of you who have known me since I became ill (or more ill) in December 2006. I am currently compiling a timeline of my health problems since I was admitted to hospital back then and if any of you have a better memory than me and think of things you think I might need to add to my timeline that I might have forgotten I would be extremely grateful if you would leave a comment here or send an email to talj80@gmail.com before Thursday.
The Waddler Returns!
April 13, 2008 at 11:23 pm | In General | 1 CommentYup, I’m home..just!
It’s been another fantastic 10 days and as soon as I am rested I’ll be here to write up my diary and share a few photos. You might have to wait till the weekend though as I am preparing for my appointment with the Consultant in London over the next few days.
Thursday is the big day and I’ll be meeting MBF at the station early in the morning so we get there in plenty of time and I get a little more used to my surroundings. This hospital holds a lot of sad memories for me
More from me soon
It’s Here!
April 2, 2008 at 12:24 pm | In Lupus Stuff | 4 CommentsWell, it has finally arrived! My appointment at the Lupus Clinic came in the post today.
11.15am on Thursday 17th April.
Unfortunately my Mum is in court giving evidence that week for something related to her job and she cant get out of it so MBF will be coming with me instead.
I am glad I now know when it will be but I’m already feeling anxious/nervous about it
Thank goodness I’m going away tomorrow, I should at least be relaxed when I get back and go to the appointment!
A few Snowdonia photos
April 1, 2008 at 9:27 am | In General | 1 CommentI still cant show very many of my shots from Snowdonia as I have entered a challenge on DPC so dont want to give away which one is mine! However, I’ve managed to find a few that could probably have been taken anywhere! CLICK HERE to view a little slideshow
This may be the last post I make for awhile as I am heading off on another break on Thursday
I should be back around 14th April with lots of pictures from Scotland…hopefully!
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