April 27, 2009 at 10:42 am | In General | Leave a Comment
Hardly had time to pick the camera up this month but tried to take a bit of time out yesterday to take some shots of my flowers before they past their best! 
It’s been a while…
April 16, 2009 at 1:30 am | In Cat, General, Lupus Stuff | Leave a Comment
Archie by MBF 11th April 1009
Sorry I have been neglecting my blogging duties, it’s difficult to find the time these days inbetween migraines, BT Buddies and 4 other projects I am working on! Sometimes life just gets in the way a little!
BT Buddies
So, where should I start this update? Well, BT Buddies is halfway through it’s second ‘live’ month and we are going from strength to strength.
Things got off to a great start when we were chosen as Northeast Center for Special Care’s website of the month…
Press Coverage
And our launch was featured in various places up and down the country and across the globe…
You can see their write up about the BT Buddies website by CLICKING HERE!
Moving on from the BT Buddies stuff, MBF, R and I are now working on 3 new websites which I will be able to tell you all more about in the next few weeks! I am very excited about the projects and hope things start taking shape very soon!
RoseBuddies
As well as managing BT Buddies and creating the 3 new websites I am also working on our fundraising ‘event’ for 2009. As the BritBallRun will not be taking place this year MBF and I have decided to do something a little different in Rose’s memory this year. We are currently putting together a book of images and words about hope. Doesn’t sound very exciting when I say it like that but we are really looking forward to finally seeing the hardwork of photographers from around the world as we piece the book together.
You can read more about the book project on our fundraising website and if you’d like to take part please read the ‘Information for the Book of Hope Photographers’ to find all the details we need from you along with your image Entries have to be with us by May 1st 2009.
Life…
I am sort of getting to grips with the surgery news, next week I am hoping to get measured up for some sort of support brace type thing…hopefully it won’t be as horrendous as ‘the boot’ especially as I’ll be wearing it permanently! I also have an appointment with my Orthopaedic Consultant at the end of the month but I think that is just to confirm I won’t be going ahead with the surgery.
A couple of weeks ago I went up to Leeds for a few days to attend some BT Buddies meetings and catch up with family. Unfortunately the day we travelled up there I was having really bad pain on the right side of my head. Since then things have been a bit ‘rocky’ as far as my headaches and stuff go and I seemed to be having more bad days than good at the moment 
I don’t know how I manage to find the time to (or energy) to keep all the projects going some days
Fatigue is also one of my biggest hurdles when it comes to trying to lead a ‘normal’ life. I say normal, however, it’s really the new normal…rewind almost 4 years ago and I would never have thought I’d be an almost 29 year old ‘widow’ with Lupus, Hughes Syndrome and a permanently broken left foot which makes me walk at a snails pace with two walking sticks!
Moving swiftly on…
MBF visited for the Easter break which was really nice. We always seem to have so much to do during his visits so it was nice to get a bit of extra time together to just chillout
We did go out for a few hours to see the Deer in a park near here. They were very tame and we even saw some people feeding them!
Deer, Knole 11th April 2009
Sadly the weekend passed far too quickly and both Archie and I were sad to see MBF go Archie is so well behaved when MBF is here, he even sleeps next to him sometimes which he never does with me!
Well, that brings you all up to date I think! Now I really should get to bed…
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